About Alfie

 

 

 

 

 

Making a difference for Alfie

About Alfie

 

My name is Alfie, i am 8 years old and suffer from a rare chromosome

disorder called MECP2 Duplication syndrome.

Alfie can not walk or talk, has profound and multiple learning difficulties, suffers from recurrent chest infections and has had bouts of pneumonia. He has epilepsy, motor stereotypies and is on the austistic spectrum.

 

He can not dress or feed himself and needs help with all aspects of daily living. He sufferes from severe constipation and reflux, has constricture of his lower legs amongst other problems and will almost certainly have a shortened life expectancy.

 

Despite all that he is the most amazing little boy who takes life in his stride, he smiles and laughs and has just learnt how to give hugs. He is an inspirational little boy who just happens to need lots of help along the way .

 

My family fundraise for me because I need specialist equipment to make

my life more comfortable.

 

The Alfie Lund Fund raises money for specialist equipment for Alfie to help meet his therapy needs and give him a more comfortable life. We work hard to raise awareness of MECP2 Duplication syndrome and have given back to local community courses through our fundraising.

Working together to raise awareness of MECP2 Duplication UK.